I haven’t written in a few days only because I have been so tired. Today was my first round of immunotherapy and so far so good, though Doctor Mullally did tell me that extreme fatigue tomorrow is well within the realm of possibility, but ironically that is a good thing, because it would show a reaction, something we are hoping for either now or in the next few weeks.
Our son decorated the Christmas tree yesterday after driving me to Boston round trip for what turned out to be a wild goose chase. My discharge papers from the hospital after my cranial surgery had a MRI scheduled for me, but to my distress when we got to the hospital, I had gotten the date wrong, the date printed out was December 4th, at 12:00 a.m, that should have been a clue, no one schedules a MRI for an outpatient on a Sunday at midnight, but I didn’t catch that, so I was very upset with myself for not being more responsible. But what actually happened was that it was a data error and I had never been scheduled for a MRI at all. So basically my son and I went to Boston, had a nice lunch and when we got home, he decorated the Christmas tree.
Today he took me to my first treatment, we had another nice lunch waiting for my prescriptions to be filled, and he took me home, he loaded up the dishwasher, we watched Full Frontal with Samantha Bee, (highly recommend it!), and then he went home.
An interesting two days, but I am lucky to have spent great quality time with our son.
laurieanichols 